How long can you live with Hughes syndrome?

Results: Thirty-eight patients (15%) died during the follow-up period. Mean age of the decreased was 35.4 +/- 12.2 years (range 21-52 years) and the disease duration 8.6 +/- 8.2 years (range 0.6-20), the median length of the survival from the time of the diagnosis was 6.2 +/- 4.3 years.

How serious is Hughes syndrome?

If left untreated, Hughes syndrome can damage your cardiovascular system and increase your risk for other health conditions, like miscarriage and stroke. Treatment of Hughes syndrome is lifelong, as there’s no cure for this condition.

What is the best treatment for antiphospholipid syndrome?

Your treatment plan Most people with APS need to take anticoagulant or antiplatelet medication daily for the rest of their life. If blood tests show you have abnormal antiphospholipid antibodies, but you don’t have a history of blood clots, low-dose aspirin tablets are usually recommended.

Can you get rid of antiphospholipid syndrome?

How antiphospholipid syndrome is treated. Although there’s no cure for APS, the risk of developing blood clots can be greatly reduced if it’s correctly diagnosed. An anticoagulant medicine, such as warfarin, or an antiplatelet, such as low-dose aspirin, is usually prescribed.

Can you live a long life with APS?

For those who do experience clots, treatment can involve the use of blood-thinning drug warfarin. When APS is managed properly, the majority of people with the illness can live normal, full lives.

Can Hughes syndrome go away?

There is no cure for Hughes syndrome. Treatment aims to ease symptoms and reduce the risk of complications. Options include: Medications to stop platelets from clumping together, such as low-dose aspirin.

What is the best blood thinner for APS?

In a recently-published study investigating anticoagulant treatment in patients with antiphospholipid syndrome (APS), warfarin was significantly more effective at preventing recurrent thromboembolic events than rivaroxaban (Xarelto)1.

What should you avoid with APS?

You may need to avoid eating large amounts of vitamin K-rich foods such as avocado, broccoli, Brussels sprouts, cabbage, leafy greens and garbanzo beans. Cranberry juice and alcohol can increase warfarin’s blood-thinning effect. Ask your doctor if you need to limit or avoid these drinks.

Can you drive with APS?

Many antiphospholipid syndrome (APS) patients are concerned about their safety to drive and whether they need to declare their condition to the Driver and Vehicle Licensing Agency (DVLA). Please remember that the law requires you to tell the DVLA about any condition that may affect your ability to drive safely.

When do you need treatment for Hughes syndrome?

For Hughes syndrome, long term treatment is usually required. If you develop the condition, you may need treatment for the rest of your life because suddenly stopping could increase the risk of blood clots re-occurring. As little is known about what causes Hughes syndrome, there is not much you can do to prevent the condition developing.

How is Hughes syndrome related to Antiphospholipid syndrome?

Overview – Antiphospholipid syndrome (APS) Antiphospholipid syndrome (APS), sometimes known as Hughes syndrome, is a disorder of the immune system that causes an increased risk of blood clots. This means people with APS are at greater risk of developing conditions such as:

How are blood thinners used to treat Hughes syndrome?

The main aim of treatment for Hughes syndrome is to thin the blood. The vast majority of people find that one-quarter of an aspirin (which has blood thinning properties) per day is all that is required to thin the blood. In cases where aspirin is not suitable, or a blood clot is present, blood thinning medication called warfarin is used.

How does Hughes syndrome affect men and women?

Hughes syndrome is a relatively common cause of recurrent stroke, heart attack, thrombosis and miscarriage. It affects both men and women, but is mainly seen in women. secondary, when another condition causes you to develop Hughes syndrome.